I don't feel demented...
So this has been a good week. I'm pretty compos mentis.
I've had brain fog for so long I didn't know if I still had it anymore. It certainly doesn't feel any worse. Then when I stop to really analyse myself, the way I'm looking at the world, taking it in, trying to listen to what J is saying, putting one foot in front of the other, it's then I realise I'm as foggy as ever.
I just seem to be calm, reasoned, (some would say that this is definitely NOT me) cognisant and you would outwardly not know much was wrong with me.
I'm not finding noise much of a problem, I was out with the goblins (gamers) yesterday afternoon and really enjoyed myself although I feel I may have said one or 2 things which might have been inadvertently rude.
Sorry if I did.
Of course I know I'm not getting better, but I should revel in these good times as a trough will occur sooner or later, where I will find typing much more difficult, the slightest noise will get to me, and I'll be even more useless than I am now.
It's just the bumpy down-hill track of a long-term illness.
I'm skill, me. |
What's next?
I've a whole bunch of medical tests coming up soon - dementia as well as non-dementia related stuff.
It' s been noted by Professor Warren's team after studying my initial MRI scan from November 2020 that my FTD Semantic Variant diagnosis is in his opinion atypical.
We don't know what this means yet. This is harder for J to take than me, as I just add it to the list of shit and keep carrying on.
We still haven't heard about appointments re the lumbar puncture and the MRI, so I'm sure it will be months before we find out what the diagnosis is and what if anything can be done about whatever it is.
V stressful for J. It's always more stressful for those nearest you than it is for you as the sufferer.
'One person has actually gotten better.' Interested to hear what has helped them.
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