Showing posts with label Fronto Temporal Dementia. Show all posts
Showing posts with label Fronto Temporal Dementia. Show all posts

Wednesday, November 29, 2023

It's Gopher Day all over again!

"Asda; call Viscount Rothermere!"

Disclaimer: there's a lot of product placement in this edition!

The other day my sister came to set up an Alexa unit. Is that what they're called? Apparently its official title is 'Amazon Echo Dot Smart Speaker.'

Alexa will do. 

(Dad is shouting "Alexa!!" as I type this!)

I couldn't remember her name. Wanted to call her 'Asda'. I knew it was wrong. Alex? I can remember Siri (Apple) and Cortana (Microsoft and Halo) but for some reason 'Alexa' eluded me. I can see the first 2 or 3 letters in my mind, know how it should feel as I mouth the syllables. I know it's a short, 2 syllable word starting with 'A'- it's obviously a name. 

I just couldn't grasp it.

(I’ve realised since typing this it’s a 3-syllable word, so that should be a good aide-mémoire should I forget it again!)

As regards my illness, I was waiting for a quantum step downwards (it's never upwards) and this appears to be it. Or maybe it's excessive beerage. Heavy drinking is essentially brain damage-inducing anyway, but I do think this is part of the dementia.

I haven't drunk THAT heavily for a while.

So I was trying to tell an old friend of the last thing I saw at the theatre which was 'Groundhog Day: The Musical', at The Old Vic. All I could see in my mind was Punxsutawney Phil being held up and his cute but gormless face, Bill Murray and the letters G-O-...hence 'Gopher'. 

Had to back track and sidle-off to the left and right in my brain, then managed to seize on the elusive 'Groundhog'. 

Know your rodents from your marmots, young lion.


Some of these words are just becoming more elusive, but I consoled myself that it took me ages to remember Frontotemporal Dementia, and that was 3 years ago.

Did I tell you I'd cleaned the driveway?

I cleaned the driveway. 

Dad was excessive in his praise of my prowess with the pressure washer.

I said 'Don't thank me, thank KARCHER!"

Took me an hour and a bit. 

How to impress girls.

Repetition, Deviation, er, er...

In fact, I am forgetting things, as I told J the above story 3 times before she told me I'd repeated myself. 

I was up in London for a meeting with the neurology bods. 

It was a bit pointless really as they'd got the photometry scans (3d scans of my brain) 2 years apart, but had yet to measure the differences. That would happen in 2 weeks. 

They could have postponed the meeting till then. I mean, they may have post-doctoral theses coming out of their bums but common sense seems to have been the price to pay.

Anyway, as usual I had to undergo a neuropsych test which I blitzed. I also pointed out a typo on the card I had to read out which had eluded everyone previously, wrote a sentence and was complimented on my handwriting, and also knew the date when asked which the neurologist had to check.

When the Prof came in he said you've probably (WTAF??) got dementia but we don't know what type.

Well, we all know I've got a dementia but it has been previously described as atypical of atypical. And as we know the brain is so complex the variables are unique to that individual.

I definitely have Pillockitis.

Udder tings...

I have been walking Tomos every weekday. He's a splendid fellow. Today I sang him 10cc songs in the style of Nico. 

You should try it at home yourselves, once you've done a professional risk-assessment of course.

I have met lots of very nice dog-walkers, and Tomos is highly sociable and wishes only to run and run with other dogs and then fall asleep at his home. 

He is a very lovely dog, and very popular.

I know other people's dogs' names, but not the owners'.

(That was an apostrophe workout!)

At the weekend at J's I met up with J, Stanley, Chippy and Wilbur. Wilbur sadly, like many of us today, also has dementia. He has tranquilisers in the evening to stop him barking at nothing at all. I looked in his eyes and he's not the same dog anymore, which is sad. His barking used to set off the other 2, but even they don't fall for it anymore. 

They know he's a demented.

DOGS KNOW.

Sir Michael Take

My new favourite spoof person on social media is the above mentioned fellow, and former MP for Dorset West. 

When Trump was elected Armando Iannucci declared 'satire is dead.' Well certainly the lines are more blurred than ever before. 

He has been quoted by The Daily Mail and GB News a few times. 

He has a wife, Bunty, who he tries to shield from coarse language, Ant and Dec, socialism and immigrants.

Did I tell you I'd cleaned the driveway?

Oh. Okay.

Friday, February 24, 2023

Remembering Simon Mayo

Simon Who?

 Lying in bed at whatever o'clock. Thinking about a film review and it took me ages to think of their names. 2 familiar people but no names. Mark. French surname. Not Lamar. The other guy. Philip? Odd surname again. Mark Kermode! 

Then I forgot the name again.

I went back to sleep. I woke up and the name - Mark Kermode. That's a good start. And Simon. Simon what though? Amstell? No.

Mark Kermode

I got downstairs and remembered Mark Kermode and Simon Mayo. But that's a new one. I'm forgetting names a lot more now. I need to keep practicing.

Bruce Willis

So Bruce Willis who we knew already had a form of dementia. His family have recently released the news that it's FTD. (J as usual guessed it was months ago.)

I hope they use his fame to promote knowledge of the disease, rather than lie back and do nothing.

It's quite nice knowing I'm a trend-setter.


Walking the Dogs

J and I walk the dogs every day. J uses it as a form of catharsis where she works through her work out loud. I don't say much at all. Just listen and occasionally drift off into my own thoughts. 

Most of it is jargon-rich corporate stuff and people who I've never met and never will. I don't understand most or any of it. But it helps her and I don't have much to say when we walk - just take in the natural world and the joy of the dogs.

Now and again she expresses the burden she feels, being the primary earner, the runner of the house, mother to me as well as the children, the dogs, her parents, her family.

It sometimes takes a while for me to express how I feel - to first work out the elemental message from all my thoughts and verbalise them in a way that's factual and free from emotion.

So I go quiet and she knows I'm upset.

I'm sorry she's burdened with my illness. It's not what I wanted either, and don't think I don't feel both guilty about it and grateful to you at the same time. But what am I supposed to do with this information? What do you want me to do?

Fair point.

I'm glad I expressed myself like that. It's increasingly difficult to express myself constructively as the alternative would be an irrational, emotional outburst.

I ask myself what do I want to say, what is underlying all these emotions?

It doesn't get any easier.

Elden Ring and gaming update



Love/hate relationship with Elden Ring. After 174 hours of game play. - 174! -  I'm on the last 2 bosses. I'm not expecting a good outcome. Some of them take 30-50 goes to get past. I ended up asking myself if I was enjoying or hating the game.

I left it for a couple of days and told J I had had enough. 

She looked relieved the man-child was off the console.

I was back on a day later. It is daft though. I'll be glad to complete it. However it's such a massive game world you could play another 100 hours to complete it all.

I've 2 D&D campaigns which are both in their latter halves - the Monday crew at its final chapter. 

I'm finding it more and more difficult knuckling down and properly prepping the games. I think having the temptation of The Elden Ring in the other room doesn't help.

But when reading and taking notes my eyes dart around the page and then I've lost my thread. Staying on a page is tough. Making notes is good but not if you find yourself on autopilot. You end up with notes that mean nothing.

I really have to knuckle down today and get my head round it all. Try and visualise the party in a situation, the motives of the NPCs (non-player characters who I run) and then play out possible outcomes. Of course, the players rarely do what you expect them to do but having various options gives me food for thought - it fleshes out the characters - so when the players throw me a curveball I'm more in the head of the character and can react accordingly.

Sunday afternoon - here I come!